Healing Rebel
Monday, September 28, 2015
Day One - Stop Screwing Around
After numerous near death experiences and hospitalizations trying the western medical/pharmaceutical route, I switched to the genetic testing and targeted supplementation route. It hasn't gone a whole lot better than the pharmaceutical route, and I'm continuing the long painful path of withdrawal from said prescription drugs.
It's time to stop screwing aroung looking for something easier, and get back to what I KNOW works.
Thanks to the genetic testing by 23andMe.com I know some important things about why my body reacts to the foods, environments, drugs, and lifestyles that it does, and I will be incorporating this information into my program.
However, a critically necessary foundation is missing: A healthy gut, sleep, and stress management.
So begins today, my first steps back in the right direction.
I am roughly a month away from being completely tapered off of Hydrocodone 10mg, ProSom 1mg, Clonazepam .5mg, and probably several months more on Xyrem.
These medications have done profound damage to body, especially in my organs, gut, and neurological health. It's going to be a bit of a recovery path to tackle. Because of this, some things that I would do, must wait for safety reasons.
Instead, I am focusing on rebuilding and supporting.
Today I took
● 2 cups of Bulletproof coffee
● Smoothie - bsnana, raw milk,100% pure hemp powder, raw cacao powder, freshly ground flax, ghee, coconut butter, honey, 2 brazil nuts, black strap molasses.
● Magnesium glycinate and lysinate
● Ubiquinol
Lunch will be
●raw cheese
●fermented pickles and kraft
●fermented cod liver oil
●uncured organic pepperoni
Dinner will be
● homemade, from scratch, chicken soup
Tuesday, October 2, 2012
Cleansing & Are We Moving Forward or Backward?
Our bodies are created to be able to cleanse and flush toxins out. Healing is an important facet of survival. It's necessary. Imagine if we couldn't heal from a cut, a bruise... imagine if something was in the way of that healing... a constant reopening of a wound or physical barrier to it's closure. Then we'd be in for a world of other problems... problems that would begin to spread to other parts of our bodies causing a chain reaction. Thankfully our bodies are intelligent. The body, given the opportunity, will heal itself. As with a wound, the first process is to clean it out. Make sure there's nothing in there that can cause illness or slow the healing process. Our bodies are well equipped to cleanse through intended passageways... our liver, kidneys, even our skin is created to allow the safe outward passage of the things that are not there to make it stronger, but often times in this heavily polluted world where "everything is going to kill you" those passageways get clogged up and stuck like a jammed up turnpike. Everyone's trying to get somewhere, nobody's getting anywhere and a few are starting to make dangerous and strange escape attempts to find another route. It's those escapists, the overflow, that starts to cause real noticeable, dangerous problems. It is exactly the same in our bodies.
This process of healing myself begins with that opening up of passageways. I stop adding to the problem. I open up the exit routes, and then work toward loosening up anything that is stuck. I talked in a previous post about things that I was cutting out. Years ago I cut out food that wasn't labeled organic. Then I cut out ingredients that weren't specifically labeled as organic, since then I have been working to eliminate processed foods altogether. It's carries a real learning curve, and I am a big believer in baby steps, so long as I continue to take steps in the right direction.
"The Right Direction" is where I get hung up sometimes. Because the very first step, that cleaning out step, feels like it's going in the wrong direction. It feels like getting sicker. It looks like a bunch of new symptoms. Then to compound the issue the dislodging/cleansing process also routinely dislodges emotional/mental muck. Age old pain, hurts, wrongs, traumas, angers, loss... these come up, requiring my attention, but more importantly my understanding. It is one thing to relive something, it is another to allow your body to re-experience the stress/pain of it and remain present in this moment so that you can understand and integrate the old pain in a way that makes you stronger and most importantly, done with it.
When I was a very little girl my world was rocked, destroyed, made terrifying by my parents drug addiction, alcohol abuse and the physical and emotional abuse and neglect that came with. It was a very effective strategy to focus on moving forward in life and seeking safety and security, while not acknowledging the terror that I really felt. Ever. Never, even as a small child, allowing myself to curl into a corner and rock the sobs. So, to this day, all those moments, never dealt with, only survived, continue to live on inside me, hidden from view like ghosts in an every repeating cycle.
Naturally, I avoid these moments of reliving and having to understand and extract. It's like walking into a haunted house, or even more like opening up the door to the haunted house and knowing that what's inside will come out that door, given the chance. It takes bravery, whether your trauma is child abuse, a traumatic marriage, a death, or even a small moment of shame when you're debit card was declined unexpectedly. Each of these things is stored until we are willing to transmute it with our understanding and acceptance. For many, this cleansing may be more important than the physical cleansing in regards to disease like Fibromyalgia and Chronic Fatigue.
Tuesday, September 25, 2012
The Great Do-Over Pt. 2 - Sleep, Rosehips, Nettles, Lemon Balm and Digestion
Step one has been to take a good look at all these moment by moment, day by day choices and see what reality I've created over the past couple of years, the proof being in the pain pudding.
Over the past couple of weeks I have been consistently replacing breakfast and lunch with a large mug of broth. This is one that I thought would be difficult, especially with the whole family at home eating actual meals, but it hasn't been difficult at all. As I'm beginning this I am dealing with
- one or two days of pain per month,
- at least two weeks of heavy fatigue each month,
- difficulty in falling asleep, difficulty in staying asleep,
- difficulty digesting food (stomach bloating, churning)
- several times per month I get a terrible electrical feeling in my body that is tied to intestinal irritation
- sensitivity to gluten, guar and xantham gum, carageenan, corn derivatives, beans, tomato sauce/paste, potato and potato derivatives
These are all things that allow me to live my life, but limit it surely. My goal is to regain complete health and freedom from all Fibro/CFS symptoms as I did for 2008/09.
To prepare I placed a bulk order with Mountain Rose Herbs. I will outline each of the herbs as I add them to my routine.
To help with sleep I have begun using approximately 30 drops of Skullcap tincture along with 5 drops of Motherwort tincture, and 5 drops of Five Flower Formula. I take it twenty minutes before going to bed. Whenever possible I take a 30 minute long bath that is as hot as I can tolerate (meaning I have to ease myself into it very slowly and likely don't lay down for several minutes - about 112 degrees) just before going to bed. If I've done it right when I get out of the bath I will have the "I need to lay down and don't care if I'm dry" feeling and will fall directly to sleep. If I'm having a night where I feel certain that I won't fall asleep readily I add a soothing essential oil to the bath like Lavender or Clary Sage (clary sage being my preference), and drink a night time tea that includes things like chamomile, passionflower, etc. On such nights I play an effective guided relaxation/hypnosis/meditation by Jan Bennet Collier while I fall asleep.
Sleep is a top priority. Nothing else that I can do will bring the heft of results that restorative sleep will bring. This week's goal is to regain control of my bedtime and what I do with myself in the hour leading up to it. I long ago abandoned my nighttime routine and schedule to disastrous results. This week I'm aiming for a consistent 10:30pm bedtime, with no stimulating media for an hour before bed. This means that I will be staying off of the computer (or TV if I had one) and be skipping any books that are emotionally charged or cognitively stimulating, in favor of soothing, calming works like Shambhala Sun Magazine, Eckhart Tolle, Pema Chodron, etc. These are things that bring me a sense of peace, quiet and certainty at the end of a day. In fact I need to get back to reading them until I regain that place of keeping peace, quiet and certainty with me throughout the day. If you read through the Cage Free Family archives you can see those things slip from my writing over time. I regain them here and there, but I eventually lose them and lose my thread of writing altogether.
Of the herbs that I ordered I have introduced three of them into my every day, Lemon Balm, Rosehips, and Stinging Nettles. I drink the Lemon Balm and Rosehips together as my morning tea, which I have with my cup of broth when I first wake up. Together they make a really yummy citrusy tea with added honey. I brew them, covered, for 15 minutes each morning.
The Lemon Balm is a member of the mint family and is powerfully soothing to the nervous system treating everything from anxiety and depression to very tough viruses like Herpes and Mono. It eases the heart and the mind (much like Motherwort) and is a wonderful tonic not just for those with chronic illness or sleeplessness, but for anyone dealing with daily stress. It has long been absent from my routine, and I am better for having it back.
Rosehips, which are actually the fruit of the rose bush, boast one of the most concentrated sources of Vitamin C available from plant or animal. In addition, they contain assimilable and high levels of iron. Not by accident, the key to digesting and using iron is the presence of Vitamin C. They strengthen the tissues of the body, support the vascular system, are cooling to the body and tonic for the mind, they treat chronic diahreah as well as stomach weakness. Native American's used Rosehips to treat muscle cramps, and they contain many vitamins and other beneficial supplements, including lycopene, essential fatty acids, beta-carotene, bioflavonoids, pectin, sugar, resin, wax, malates, citrates and other salts, tannin, malic and citrus acids, magnesium, calcium, iron, manganese, phosphorus, potassium, selenium, sulfur, zin c and vitamins A, B-1, B-2, B-3, B-5, C, D, E and K.
For the all-amazing Nettles I make an infusion every night before bed and drink it all day. Aside from it's truly incredible list of balanced vitamins, minerals and protein (yes, protein!!) it is long renowned for it's benefits for the kidneys (one of our toxin elimination pathways) and the adrenal system (what sick person isn't dealing with adrenal stress, heck, what modern person isn't?) Herbalist Susun Weed says "A quart of nettle infusion contains more than 1000 milligrams of calcium, 15000 IU of vitamin A, 760 milligrams of vitamin K, 10% protein, and lavish amounts of most B vitamins. There is no denser nutrition found in any plant, not even bluegreen algae; and nettle is much more reasonably priced than any supplement, especially if you buy more than an ounce or two at a time." It is amazing for increasing energy and general wellbeing. For more info click here.
In addition to the herbs I am dealing with my poor digestion with the introduction of Betaine HCI and a pancreatic enzyme that contains amylase, protease, and lipase. I have found that taking these with a meal eliminates the painful bloating and the hours of churning. Both are available at any herb or natural food store as well as many sources online like Amazon.
Thursday, September 13, 2012
Taking the Plunge - The Great GAPS Do-Over
But, healthy is a tricky thing, or rather, the mind is a tricky thing when it comes to health. When we are feeling healthy we are often feeling indestructible and brave. We are feeling certain of our enduring health. Like a teenager who believes in their own immortality we take risks, we test limits, we fall for lies, and we slip into the crowd. I did just this. After less than 6 months of pure health and freedom we took off for an epic trip around the country that would last more than a year. The trouble began just four weeks later when we arrived in Taos, NM. Lured in by the promise of "the most amazing pizza" we leaped off the wagon and never looked back. From that point on we loaded our RV with healthy organic food, and ate out at every pizza joint we crossed (or could seek out) in 27 states. There was a time in the summer of 2009 that I could eat pizza two times in a day and 7 times in a week. Pizza. From any kind of restaurant, from the hole in the wall sliceries to the fanciest pizzerias. Made with god knows what kind of ingredients, and stuffed with gluten, hormones and preservatives. Feeling strong I didn't actually worry about it. Then when there were no repercussions I we emboldened and moved out with wild abandon into my reckless crash back into the S.A.D. (Standard American Diet).
It was two months before I was willing to recognize that I was not feeling perfect anymore, but my psyche was all too willing to rationalize it away. I was healthy after all... look at all the things I could do!
Four months after falling off the wagon ( a full 18 months before I should have even attempted to start adding foods back into my diet) I was having pain again and no longer woke easily in the morning. I was heading in the wrong direction and clinging to the lies my mind gave me to make it okay. I was living freely for the first time in memory. I was traveling the country and wanted to experience everything with no limits, and so I did. Here's the kicker, the GAPS diet that I gave so little time to had given me so much healing in that short time that I was able to get away with this for more than a year, until my body succumbed to the major taxation of pregnancy and could no longer handle both things. By the summer of 2010 I was again experiencing the full range of Fibromyalgia symptoms, with a new baby, a temporarily crippled husband and a house torn down for mold remediation and renovations, we turned again to a dependency on restaurants and easy foods. I actually cringed when I watched myself feeding my children boxed organic cereals for breakfast, and there I met the end of my reign of health and perception of it.
I cleaned up my act. We cut out all the major offenses from packaged and restaurant foods, to flours. It was a definite improvement. I felt my health return fairly quickly and regained a sense of control. But, since then I have had this lingering feeling of fatigue, sensitivity, and general poor constitution. It follows me around at all times making me question what I am capable of... what I can get away with. I have felt strained, anxious, weak, uncertain and afraid of the occasional flare ups. It sucks. It has sucked for more than two years now... that fear, uncertainty and doubt. The hard but unlabeled limits to my health.
And so, after years of hemming and hawing about it I am going to take the plunge and begin all over again with my eye on utter and complete health... fearless freedom in my physical existence. I have tried all things on the scale from deep disease to absolute health and every compromise in between. I think I needed to know the limits. I think I needed to know the truth about my choices. I know now. No amount of food freedom is worth living with the threatening shadow of disease.
I am going to do my best to document the whole process here. I'll include the good, the bad, and the (inevitably) very ugly.
Let's go ahead and begin with where I am: The Preparing/Planning Phase.
On the intro diet of GAPS I will be limited to bone broth and boiled meats and vegetables. Last time we had the whole family on the diet. This time, for now, I will be going it alone. Each week, as always, I will make a breakfast/lunch/dinner/snack menu for the family, but I will plan a different menu of broths and soups for myself.
Since I know that I have digestive issues I will be taking both a Pepsin-HCI supplement as well as a pancreatic enzyme supplement. I have been taking Bio-Kult brand Probiotics, so I will continue with that with the goal of adding in fermented veggie juice to my broth and ultimately fermented vegetables like homemade pickles, kimchi and sauerkraut.
In addition to the probiotics, and enzymes I have tinctures of Skullcap (a nervine), St. John's Wort (an anti-inflammatory) and California Poppy (for pain).
Over the next couple of weeks I will build up a supply of meaty bones (for soups/stocks). Right now we make (and use) around 17 quarts (4.5 gallons) of bone stock every 7-9 days. When I am eating in for all three meals a day and snacks I will likely need more as I will be consuming around three quarts per day. To manage this we buy our organic bones in bulk from a local rancher and have a 9 gallon lidded stock pot to brew the 4.5 gallons of stock in.
I will also be ordering (discounted) bulk amounts of celery, onions, and garlic from the farmers at the local farmers markets. Luckily I have a ton of carrots, beets, tomatoes and squash growing our our gardens to add to the soups and won't need to purchase these for a few months.
I have also purchased 5 lb bags of Celtic Sea Salt and Organic Peppercorns. I will be using these along with dried herbs to flavor broth and soups. This week my order of 2 gallons of organic unrefined coconut oil arrived with my 5lb bags of Nettles, Raspberry Leaf, Oatstraw, Horsetail, Comfrey, Elderberries, Rosehips and others that I will outline in another post that includes their useful properties and their preparation. Many of these provide essential vitamins and minerals in addition to their ability to ease certain symptoms.
What I am presently lacking is a supply of detox bath ingredients. I did not do detox bathing last time, but I would really like to do it this time to ease the process. Baths have long been my safe space, if I am feeling ill, overwhelmed, nervous, tired, angry, sad, anything, you will likely find me in the bath. It eases all ills. This time I will be adding things like sea salts, baking soda, and clay to the water to draw out the toxins that will be looking for a way out once I begin the healing process and cutting out the foods that supply these toxins into my body.
Right now I'm feeling a little more powerful and certain a shift that always comes when I shift from worry to action, but I am also nervous about managing the cost, dealing with the cleansing symptoms, sticking to my prescribed diet while my family eats my favorite foods, and remembering to take my supplements consistently. I can not afford enough Fermented Cod Liver Oil to keep a consistent supply of it, so I will take it when I can and forget about it when I can't.
For right now I will be going without the acupuncture support that I had last time, as well as the medicinal marijuana to manage the die-off and cleansing pain and panic attacks. This cleansing and healing of the gut can have pronounced effects on the way that the world feels, looks, seems, so it can create some very intense emotions. For this I will be turning to herbal teas, a safe space to work through intense moments and support from my husband when I need the reassurance that I will need, for even having experiential knowledge of how this works and what it feels like and how it will turn out in the end, in those intense moments it can all go out the window in a quick panic. I want to be prepared for that.
One last thing. I have obtained a prescription for eight 5/325 Hydrocodone from a local clinic. These are my last stronghold against the fear that can cause me to fail to begin or to quit when the going gets tough. The goal is to not take them at all since they will extend the cleansing, healing process, but I have them for peace of mind. Whenever I feel that fear, that worsening (before bettering) of symptoms I will have my silent promise to myself: You can handle this, and if you can't you won't suffer it. This is a choice, not a sentence. This is a choice, not a sentence. Make the right one.
Saturday, June 30, 2012
But, WHY Am I Sick?
Why? Well, I'm no doctor (thank god) but in my experience, and that of every other Fibro Survivor I have met, it is a case of toxic overload of the body. Our chemical and food environments are wholly different than those of our grandparents. In a single generation we have dramatically altered the world that we live in. There are more than 7,000,000,000 recognized chemicals in existence, and more than 80,000 of them are in common use, though the EPA and FDA have no idea how many chemicals are in use in consumer products, what products they are in, nor what these chemicals actually do. Thousands of new chemicals are approved for use in consumer products each year and the EPA and FDA can only request a small amount of information about these chemicals because the actual content and actions of the chemicals are protected. 80% of these new chemicals are approved within 3 weeks with no information about what they are, how they will be used, or what they might do to life on the planet or inside your body.
We rub our bodies with known carcinogens. We clean our homes with hormonal disrupting chemicals created in a lab. The most affordable foods available are also created in labs and factories, and then when we turn up sick, exhausted, depressed, afraid, we are treated with chemical pills created right along side our cleaners and pesticides. To prevent illness we saturate our entire environment in antibiotics and antimicrobials. The fundamental problem here: We ourselves, our comprised of bacterias. Without them our bodies cease to function, cease to be able to digest and use the food we eat, cease to be able to defend against and then get rid the toxins that we take in.
Let's break for a moment a learn a couple of interesting and important things about our bodies:
EPIGENETICS - what are they and what does it have to do with Fibromyalgia and other environmental illness? Here's where we return to that oh so helpful thing we get told about Fibro, "It appears to be genetic". Epigenetics affect how a gene (your DNA) is expressed, or "turned on or off". Many, many factors can affect your epigenetic tags from the food we eat to the chemicals we are exposed to. Some epigenetic tags can be passed down from your mother or father.
"Why is learning more about epigenetics important? Everything you've been taught about genetics is wrong! Well, it's not completely wrong, but if you weren't taught about epigenetics, you weren't told the whole truth. The genes were born with do change. Our DNA is not set in stone." The good news is that also means that you can CHANGE yours. In the pursuit of simplicity, let's turn to this quick Nova video explaining Epigenetics.
"As the chemical tags that control our genes change, cells can become abnormal, triggering diseases."
[youtube http://www.youtube.com/watch?v=7WEHoCA1hpo&w=560&h=315]
"One of the main findings of research is that epigenomes can change in fusion with what we eat, what we drink, what we smoke, and this is one of the key differences between epigentics and genetics."
I have all the reason in the world, my health, to believe that a person can, on their own, repair their epigenetics in the same way that they sustained the damage: what we put into, onto and around our bodies in the form of food, drink, vitamins, minerals, and chemicals.
How the guts work:
"All disease begins in the gut" -Hippocrates
"And the more we learn ,with all our scientific muscle, is just how right he was, just how correct he was. When we talk about the digestive system, we have to talk about what lives there and what takes care of it. We have to talk about the housekeepers of our second brain and our major immune system organ, and the organ which feeds us and protects us and detoxifies us. We have to talk about gut flora. The scientists recently, in Scandinavia, have established the fact that about 90% of all cells and all genetic material in your body is your gut flora. So we are just about 10% of our bodies, we only are a shell that holds this microscopic world inside us and we ignore that world at our peril. It's role of our physiology, and our psychology, and functioning of that 10% of us, is so fundamental that because we have ignored it for such a long time our health status is in a bad way at the moment." -Dr. Natasha Campbell-McBride
Here is Dr. Campbell-McBride on why a healing diet is fundamentally necessary to the reversal of diseases such as Fibromyalgia and Chronic Fatigue Syndrome.
[youtube http://www.youtube.com/watch?v=Z_0NvcJZwa8&w=420&h=315]
What we eat, what we put into our bodies, and on them... the chemicals we choose to clean our homes, our laundry, our hands and our hair, to scent our air... the chemicals that are applied to our foods without our knowledge or labeling laws to protect us... these things are the things which are making us sick. These things are the things which we can choose to eradicate from our lives. Knowledge is power my lovelies, and as you begin to fill your brain with all the truths of the matter of why we are sick you will find that therein lies the power that you need to manage everything that you must do to reclaim your life, your health.
So, here's to our health!
Or as my father says, "Eat as if your life depends on it!" because, after all, you are what you eat ;)
Sunday, June 3, 2012
A hundred years ago, all food was organic
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Excerpts from an article by Mark Hyman, M.D.
A hundred years ago all food was organic, local, seasonal, fresh or naturally-preserved by ancient methods. All food was food. Now less than 3 percent of our agricultural land is used to grow fruits and vegetables, which should make up 80 percent of our diet. Today there are not even enough fruits and vegetables in this country to allow all Americans to follow the government guidelines to eat five to nine servings a day.
What most of us are left with is industrial food. And who knows what lurks in the average boxed, packaged, or canned factory-made science project.
In the 21st century our tastes buds, our brain chemistry, our biochemistry, our hormones and our kitchens have been hijacked by the food industry. The food-like substances proffered by the industrial food system food trick our taste buds into momentary pleasure, but not our biology, which reacts, rejects and reviles the junk plied on our genes and our hormonal and biochemical pathways. We need to unjunk our biology.
Industrial processing has given rise to an array of addictive, fattening, metabolism-jamming chemicals and compounds including aspartame, MSG (monosodium glutamate), high-fructose corn syrup and trans fats, to name the biggest offenders.
MSG is used to create fat mice so researchers can study obesity. MSG is an excito-toxin that stimulates your brain to eat uncontrollably. When fed to mice, they pig out and get fat. It is in 80 percent of processed foods and mostly disguised as "natural flavorings."
And trans fat, for example, is derived from a real food -- vegetable oil -- chemically altered to resist degradation by bacteria, which is why modern cookies last on the shelf for years.
But the ancient energy system of your cells is descended from bacteria and those energy factories, or mitochondria, cannot process these trans fats either. Your metabolism is blocked and weight gain and Type 2 diabetes ensue.
Your tongue can be fooled and your brain can become addicted to the slick combinations of fat, sugar, and salt pumped into factory-made foods, but your biochemistry cannot, and the result is the disaster of obesity and chronic disease we have in America today.
No wonder 68 percent of Americans are overweight. No wonder that from 1960 to today obesity rates have risen from 13 percent to 36 percent and soon will reach 42 percent. Over the last decade the rate of pre-diabetes or diabetes in teenagers has risen from 9 percent to 23 percent.
The best advice is to avoid foods with health claims on the label, or better yet avoid foods with labels in the first place.
